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Family Forum / Pregnancy / Breastfeeding / February 2004Slightly OT: Info on allergies & cow's milk alternatives please
In brief: the midwife/nanny/lactation consultant who helped me out when Froggie was a newborn phoned me today to ask about allergies. She is looking for resources on baby allergies, especially to cow's milk products. Can anybody provide any suggestions please? Helpful things would include: 1) Books 2) Webpages 3) Clued-up healthcare professionals that she can consult or refer her clients, especially nutritionists, dieticians, pediatricians etc. Ideally such people would be London-based. 4) Info on alternatives such as goat & soya - recommended brands, analyses, any opinions/experiences This LC is extremely pro-BF so please don't slam her (or me) for asking about this. She turned to me because I found very early on that Froggie is allergic to cow's milk products but is perfectly ok on goat's milk products (as am I). She said that she's always preferred to recommend standard cow formula (1) because it's been more extensively used & studied but that so many clients are phoning up with problems (acid reflux, eczema, protein allergies, lactose intolerance were the four she mentioned) that she realises she needs to bone up on this. Clearly different problems require different approaches. Last summer I met a woman whose lovely baby was exactly the same age as Froggie, but who was considerably smaller. And Froggie is a petite baby herself. This baby was allergic to all kinds of milk including, staggeringly, breastmilk. She had to be fed bottles of, as her mum put it, "pharmaceutical pretend food, thickened with rice flour to make it look vaguely milky, so the parents can pretend it's milk.' Does anybody know what this stuff might be? All help gratefully received. (1) When it's been necessary, breastmilk being otherwise unavailable  SignatureMogget, the Churl in the Puce Greatcoat > In brief: the midwife/nanny/lactation consultant who helped me out when > Froggie was a newborn phoned me today to ask about allergies. She is [quoted text clipped - 33 lines] > > (1) When it's been necessary, breastmilk being otherwise unavailable i've heard them talk about the formula "neocate" (see http://www.shsna.com/html/hypoallergenic.htm) on a food allergy list i'm on. some kids & people with very severe food allergies eat it. it's apparently just made from amino acids. i'm sure beth kevles & some other people who post on here can give you good info. her website is http://web.mit.edu/kevles/www/nomilk.html BTW. Signatureelizabeth (in australia) DS - born 20-aug-02 > i've heard them talk about the formula "neocate" (see > http://www.shsna.com/html/hypoallergenic.htm) on a food allergy list i'm on. > some kids & people with very severe food allergies eat it. it's apparently > just made from amino acids. My daughter was on Neocate for about a year, in addition to breastmilk (with me following the allergen free diet), and table foods. We had to use it because she was allergic to milk and eggs and wasn't growing properly. It's 'high calorie', and it is just amino acids, but also, they're all single chain. It's also unflavored, pretty yucky, and extremely expensive (about 1$/oz., for the powdered one. Not sure about the kind that comes in a juicebox, 'cause my daughter doesn't like sweets so she wouldn't try that one). I'm going to go back and look at the OP to see about those questions, but I just wanted to mention this, too. Tina. Hi - My web site has some information. I hope it's a good start. --Beth Kevles bethkevles@aol.com http://web.mit.edu/kevles/www/nomilk.html -- a page for the milk-allergic Disclaimer: Nothing in this message should be construed as medical advice. Please consult with your own medical practicioner. NOTE: No email is read at my MIT address. Use the AOL one if you would like me to reply. > 4) Info on alternatives such as goat & soya - recommended brands, > analyses, any opinions/experiences The best soya milk I've found is Provamel Alpro Sweetened with calcium. Works great in tea. The aseptic packaging is better than the refrigerated one, my that's my opinion. The best butter subsitute is Pure Organic Sunflower spread. (www.pure.co.uk, I think). I'm going to miss it when we're in the States. Oh, a great thing to have in-house is Granose's Soya Creem. Works like double cream. For kids, as they get older, Rice Dream vanilla is nice with meals. P's had that as his primary drink, and he likes it a lot. Oh...check the labels, but After Eights are dairy free, most of the time. Always look at the box to make sure. I found all this at our local Tesco. Signature"In Finnegans Wake, he just made up words. Now that's just not sporting!" ..A friend on James Joyce > For kids, as they get older, Rice Dream vanilla is nice with meals. P's > had that as his primary drink, and he likes it a lot. We get the calcium enriched one - S didn't like the vanilla much but she loves the unflavoured ones. > Oh...check the labels, but After Eights are dairy free, most of the > time. Always look at the box to make sure. Unfortunately made by Nestle:-(. There is an Irish made alternative, I just can't think of the company name off the top of my head. We got them in Superquinn at Christmas and S loved them > I found all this at our local Tesco. Our local Tesco sucks. The one near my Mum is much nicer. But I did bully Superquinn into doubling their order of Rice Dream. Nothing like complaining to the manager that your allergic child can't have milk substitute because it's always sold out. Even better is to do it three times over Christmas week ;-). Jean > There is an Irish made alternative, I just can't think of the company name > off the top of my head. We got them in Superquinn at Christmas and S loved > them Oooo...I know the ones you mean, and I can't think of them either. But I know the box. > Our local Tesco sucks. The one near my Mum is much nicer. But I did bully > Superquinn into doubling their order of Rice Dream. Nothing like > complaining to the manager that your allergic child can't have milk > substitute because it's always sold out. Even better is to do it three > times over Christmas week ;-). Helps us that Tesco Ireland is in Dun Laoghaire, and I think Bloomfield's is their flagship store. We bully them about the Alpro soya milk (DH knows the manager by name now, and they say "You know, the guy who is always asking about the soya milk? He's back again..." :-) DH says he's talked to the guy easily at least 6 times. You'd think that if it's SOLD OUT then they would make sure to buy more, cause it's popular?! Most consistent excuse is the "supplier"...they ordered 4 cases and only one showed up. Have you tried the Provamel Yofu? P loves the peach and mango..."pengo!!!" he calls it. Signature"In Finnegans Wake, he just made up words. Now that's just not sporting!" ..A friend on James Joyce > Oooo...I know the ones you mean, and I can't think of them either. But > I know the box. Celtic Creams I think - nice packaging too. So stop buying from the evil network and support local industry instead ;-). > Helps us that Tesco Ireland is in Dun Laoghaire, and I think > Bloomfield's is their flagship store. The one near my Mum is their newest store. > Most consistent excuse is the "supplier"...they ordered 4 > cases and only one showed up. Yeah, they tried that one on me. Along with "I think we get a delivery of that every day". "Yeah, well it's always sold out no matter what day of the week I come in." In January, the stocks on the shelf had mysteriously doubled. > Have you tried the Provamel Yofu? P loves the peach and > mango..."pengo!!!" he calls it. Heh - it's a staple in our house, along with the chocolate and vanilla desserts (though I eat them more often than S does). Jean > For kids, as they get older, Rice Dream vanilla is nice with meals. P's > had that as his primary drink, and he likes it a lot. mmm. rice dream is delicious. we can only get it in some health food shops where i am. thanks for the reminder! Signatureelizabeth (in australia) DS - born 20-aug-02 but then again I might just have mucked up the snipping as usual! >3) Clued-up healthcare professionals that she can consult or refer her >clients, especially nutritionists, dieticians, pediatricians etc. >Ideally such people would be London-based. Professor Brostoff is one of the best, apparently. I think he is at UCH now. When I attended his clinic he had an excellent dietician who had multiple food allergies herself. Be warned though, he has a long waiting list for NHS referals, but I believe he practises privately as well. >4) Info on alternatives such as goat & soya - recommended brands, >analyses, any opinions/experiences You may find it easier to remove white opaque liquids altogether when Froggy is older. You can replace the nutrients in milk far more efficiently with other foods really. As a child I had all sorts of weird things because milk free alternatives were just not available in NZ at the time (even my soy formula had to be collected from a hospital once a month as it was not even licensed for prescription use via a pharmacy). Mayonnaise (often homemade) on sandwiches is still a common one for me (there were *no* dairy free margarines). Soy and rice milk are *OK*. Not particularly nice IMO. Anything thats flavoured is full of additives and YMMV on those. Likewise anything like soy yoghurt, cheese etc are so packed full of additives and heavily processed in order to get them to look like a dairy product that I would balk at giving them to a baby (though I have to admit to being partial to toffutti myself !) Megan -- Seoras David Montgomery, 7 May 2003, 17 hours: sunrise to sunset (homebirth) To e-mail use: megan at farr-montgomery dot com > (though I have to > admit to being partial to toffutti myself !) Ooo...forgot about those...the Sour Supreme and the cream cheese is excellent. Signature"In Finnegans Wake, he just made up words. Now that's just not sporting!" ..A friend on James Joyce >In brief: the midwife/nanny/lactation consultant who helped me out when >Froggie was a newborn phoned me today to ask about allergies. She is >looking for resources on baby allergies, especially to cow's milk >products. <Snip> Many thanks for all your comments. I shall pass it all on. You are a useful lot. SignatureMogget, the Churl in the Puce Greatcoat |
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