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Family Forum / Parenting / Parenting / August 2005



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Rosalie B- an 'unusual condiction'

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scoff12@yahoo.co.uk - 27 Aug 2005 12:45 GMT
The fact that in your eyes I have an unusual condiction is not reason
to be dismissive of it. I and people like me have the right to have out
condiction treated with respect. THe problem comes becuause society at
large is not understanding enought.

Actually I think its pretty offensive to say that I have an unusaul
condiction, it bit like you are putting it on to me, saying I'm unusual
and its my problem.

If your children and grandchildren were said to have an unusual
condiction I wonder how your would like that.

For kids like me school was child abuse. That what it was.
Rosalie B. - 27 Aug 2005 12:57 GMT
Take pride in your difference, and work to overcome it instead of
sitting back and whining that you are mistreated and taking offense at
everyone who disagrees with you.

>The fact that in your eyes I have an unusual condiction is not reason
>to be dismissive of it. I and people like me have the right to have out
[quoted text clipped - 4 lines]
>condiction, it bit like you are putting it on to me, saying I'm unusual
>and its my problem.

This is tough love.  Not letting someone slip into the trough of
self-pity.

>If your children and grandchildren were said to have an unusual
>condiction I wonder how your would like that.

I wouldn't like it, but I would do all in my power to see that they
had appropriate help.

>For kids like me school was child abuse. That what it was.

So what are you doing about that?

Whining to the newsgroups and feeling sorry for yourself isn't helping
is it?  Take a lesson from someone like Christopher Reeves who did all
that he could to help himself and help others who might also have the
same injury or problem.


grandma Rosalie
scoff12@yahoo.co.uk - 27 Aug 2005 15:23 GMT
oh f.ck you stupied bitch, what you whining is the hurt and damage I
fee and I know that other kids are going through the same thing. That
tough love approach is just bollocks. The fact i was mistreated and its
still happening to people like me and its wrong and what are you doing
to stop it.

How I feel is how I feel. I thing everyone has times when they feel
down and the stop feeling sorry foryourself bullshit just makes it
worst.As you are not in my shoes you can't make a judgment.

The fact is I need support and help and am not getting it. My problems
come from how i have been treated over the years and that is true of
many people with dyspraix. It like people who have sexuall abused, it
stays with them.

you are probaly are not aware but about 60 % of youth offenders are
dyslexic / dysrpaxic etc. They are there becaue they have not had the
support they need, drift into crime and drugs.

You mention about whining to the newsgroup but it the people in this
newgroup, who should be doing something about the problems people with
dyspraixa face.

What are you doing for people with dyspraxia? Proably nothing and you
probably don't even see why you should.

If I'm not getting the help then society as a whole has to take
resposibility.
toto - 27 Aug 2005 17:52 GMT
>You mention about whining to the newsgroup but it the people
>in this newgroup, who should be doing something about the
>problems people with dyspraixa face.

Why should the people in this newsgroup particularly be doing
something about *your* problems or the problems of any other
person with dyspraxia.   You have to realize that some of us
have other problems.    Atm, I am dealing with my dgd who is in
speech therapy because he is not talking at all.  My dil and her
sister are partially deaf.   What are you doing to help people
who cannot hear?  He may be verbally dyspraxic.  If he is, we
will be working through therapy and other means to help him be
the best that he can be.

>What are you doing for people with dyspraxia? Proably nothing and you
>probably don't even see why you should.

You haven't a clue what Rosalie is or is not doing in real life to
help others.  But please remember that dyspraxia is not the only
problem in the world and others have other priorities.  If you want
to help, then try a real life group that deals with the specific
problem that you have.

http://www.ninds.nih.gov/disorders/dyspraxia/dyspraxia.htm

Most of the teachers I know work hard to make sure that all
their students get help.   There are currently lots of books out
to help with different ideas on how children who learn differently
can achieve a great deal.

The Out of Sync Child and The Out of Sync Child Has Fun
by Carol Stock Kranowitz are good books to reccommend
to teachers and parents if they are working with kids who
have this kind of disability.

>If I'm not getting the help then society as a whole has to take
>resposibility.

How old are you currently?   There are organizations that help
people now.  You just need to find one.  You will not find it
on a newsgroup where parents are discussing the day to day
issues they have with raising children.

I would suggest that you post to alt.support.dyspraxia if it is
on your newsserver, although that group appears not to have
much traffic.   You can try alt.support.dyslexia as well as there
seem to be more real people around there and the disabilities
are somewhat related.

--
Dorothy

There is no sound, no cry in all the world
that can be heard unless someone listens ..

The Outer Limits
scoff12@yahoo.co.uk - 31 Aug 2005 16:17 GMT
> Why should the people in this newsgroup particularly be doing
> something about *your* problems or the problems of any other
[quoted text clipped - 5 lines]
> will be working through therapy and other means to help him be
> the best that he can be.

I will answer your points.  First of all my comment F... .... was
uncalled for and I apologise for that.   I have, and do spent a lot of
time doing voluntary work with disabled people such as mentally
handicapped (now called learning disability),the homeless, and raising
money generally to help people. So I don't just think about my self.
I think the point I was making is that sometimes I find it helpful to
talk about how I feel. Generally I am quite undetanding with people
when they talk about thier problems. In real life people often do by
the way but I have come to realise that I also need to talk about mine.

Someone saying stop winging, well sometimes I need to wing. Most of the
time I don't but sometimes it helps to let of steam.

II think there needs to be more awarness of the condiction and I think
people should, show understanding and tolerance. Someone may say why
should I show understanding and tolerance, to which I guess there is
not answer.> >> >
> You haven't a clue what Rosalie is or is not doing in real life to
> help others.  But please remember that dyspraxia is not the only
> problem in the world and others have other priorities.  If you want
> to help, then try a real life group that deals with the specific
> problem that you have.

I agree that I do not have a clue what Rosalie is doing in the real
world. I also agree that dyspraxia is not the only problem in the world
but as I said i have been involved in various charities. However my
life is as important to me as anybody else so for me it is a priority.
The reason why i feel more should be done is because many people have
not had thier dyspraxia picked up at school and are going through life,
drifitng from job to job, suffering mental torture,leading to mental
health problems, depression, anger, some drift into drugs, crime. I
have never taken drugs mysefl or got into crime because that just makes
things worst in the long run and becasue I am would not want to.
The thing is because you cannot see someone is dyspraxic people often
don't undersand it and misinterpret peoples behavoiour which can lead
to people being isolated and marginalised.

> >   There are organizations that help
> people now.  You just need to find one.  You will not find it
> on a newsgroup where parents are discussing the day to day
> issues they have with raising children.

Yes, but I can raise the awarness on a site like this. There are
probably parents on this site  with children who have problmes like
dyspraxia etc and  maybe raising awarness will mean their childrens
dyspraixia will get picked up sooner rather than later.

> I would suggest that you post to alt.support.dyspraxia if it is
> on your newsserver, although that group appears not to have
[quoted text clipped - 9 lines]
>
> The Outer Limits
Rosalie B. - 31 Aug 2005 17:27 GMT
<snip>
>Someone saying stop winging, well sometimes I need to wing. Most of the
>time I don't but sometimes it helps to let of steam.

Usually we label these posts [Rant} or something similar so that
people can respond with sympathy.

<snip>
>I agree that I do not have a clue what Rosalie is doing in the real
>world. I also agree that dyspraxia is not the only problem in the world
[quoted text clipped - 20 lines]
>dyspraxia etc and  maybe raising awarness will mean their childrens
>dyspraixia will get picked up sooner rather than later.

If you wanted to raise awareness here, you went about it the wrong way
- first by ranting about how badly you were treated (which you were,
but it was a bit off putting and might have resulted in our thinking
you were a troll) and second by going over the top and suggesting that
children don't need sports (or by implication physical activity), when
what you really wanted to say (I'm guessing) is that over competitive
coaches were not appropriate for most children who were learning a
sport.  

Very few parents here would agree that sports were across the board
bad for children.  But most of us would be sympathetic to your
problems if you had done less attacking and more informing.

grandma Rosalie
scoff12@yahoo.co.uk - 27 Aug 2005 15:31 GMT
oh f.ck you stupied bitch, what you whining is the hurt and damage I
fee and I know that other kids are going through the same thing. That
tough love approach is just bollocks. The fact i was mistreated and its

still happening to people like me and its wrong and what are you doing
to stop it.

How I feel is how I feel. I thing everyone has times when they feel
down and the stop feeling sorry foryourself bullshit just makes it
worst.As you are not in my shoes you can't make a judgment.

The fact is I need support and help and am not getting it. My problems
come from how i have been treated over the years and that is true of
many people with dyspraix. It like people who have sexuall abused, it
stays with them.

you are probaly are not aware but about 60 % of youth offenders are
dyslexic / dysrpaxic etc. They are there becaue they have not had the
support they need, drift into crime and drugs.

You mention about whining to the newsgroup but it the people in this
newgroup, who should be doing something about the problems people with
dyspraixa face.

What are you doing for people with dyspraxia? Proably nothing and you
probably don't even see why you should.

If I'm not getting the help then society as a whole has to take
resposibility.
Donna Metler - 27 Aug 2005 15:02 GMT
Scott, I posted that I have essentially the same condition. And that for ME
school PE wasn't abusive and that physical activities were part of the
overall package which helps me to function better.  In fact, the LAST thing
you need with a deficit in coordination/motor skills planning is for the
muscles to be out of physical condition as well, because then it takes MORE
work to get them to behave.

Your program was deficient. Period. That doesn't mean that all, or even most
schools are. In the USA, in a public school, you would have qualified for an
IEP to meet your needs, and it would have included PE.

Signature

Donna DeVore Metler
Orff Music Specialist/Band/Choir
Mother to Angel Brian Anthony 1/1/2002, 22 weeks, severe PE/HELLP
And Allison Joy, 11/25/04 (35 weeks, PIH, Pre-term labor)

scoff12@yahoo.co.uk - 27 Aug 2005 15:28 GMT
I glad that you had good experiences at school and seemed to get the
help you needed. But I have meet a lot of people with dyspraxia both in
person and over email.
A common theme, appears to be that people are not getting the help they
need and many teachers  thing it is an excuss.

In the end i can only go on my experienc and I would like to thing that
schools have changed but still seems to be the case that people are
being written off.
scoff12@yahoo.co.uk - 27 Aug 2005 15:28 GMT
I glad that you had good experiences at school and seemed to get the
help you needed. But I have meet a lot of people with dyspraxia both in
person and over email.
A common theme, appears to be that people are not getting the help they
need and many teachers  thing it is an excuss.

In the end i can only go on my experienc and I would like to thing that
schools have changed but still seems to be the case that people are
being written off.
 
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