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not a good thing

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kiticat - 27 Jul 2007 17:51 GMT
today didnt go very well at the hospital. Saw my cataract surgeon this
morning and that was fine.

Then had my appt for the yag capsulotomy this afternoon. They couldnt
find my notes so my surgeon - a different one came looking for me. She
was really huffy and asked whether I'd arrived late -  she put drops in
my eye told me it would take 10 mins to work. Then she turned her back
and was looking online for jobs in the middle east and London (she was
Asian)

anyway, she thought one of the drops wasn't working fast enough so she
put more in then gave me a consent form to sign and took me to the laser
room. More drops and a special contact lens and she started setting up
the laser for my eye.

She kept repositioning me as I looked at swirly lights then I heard a
'snap' my eye filled with pink and she made a noise. She leapt up,
pulled the lens out of my eye and said she was going to get my cataract
surgeon to do the proceedure. She left the room and I was left alone.
All I could see was reddish pink form that eye. I panicked thinking she
had damaged my eye.

She came back into the room and said that they have decided I don't need
the proceedure and come back in 6 months please.
!

I just didnt understand - I asked to see my own surgeon - she said he
had left already, I could see him next week if i made an appt. I told
her I didn't understand what was going on - why can't she do it now. She
told me it wasn't safe. I asked her if she had damaged my eye. She
laughed and patted me and said 'oh no,'. She had a quick look and said
it was ok, that it was just the drops.  I asked her to explain why it
wasnt safe, she told me she had done 7000 cataract operations and this
proceedure lots. Then finally she told me that the capsule was sitting
too tight against the lens and she risked damaging the lens.

I'm still not sure I trust her. I don't know if my horrendous vision in
my eye is down to something she did - she says not but....? If its not
better when the drops have worn off I'm going back in. I think the
upshot is that I have to wait until the scarring and my vision is so bad
that its worth taking the risk. So now I'm left feeling scared with the
prospect of months of deterioation at best.
Cindi - HappyMamatoThree - 27 Jul 2007 18:41 GMT
> I'm still not sure I trust her. I don't know if my horrendous vision in my
> eye is down to something she did - she says not but....? If its not better
> when the drops have worn off I'm going back in. I think the upshot is that
> I have to wait until the scarring and my vision is so bad that its worth
> taking the risk. So now I'm left feeling scared with the prospect of
> months of deterioation at best.

My Gosh what a horrible experience. I would be on the phone demanding to
talk to my surgeon. I had one bad experience with a BAD anesthesiologist who
cancelled a surgery an hour before it was to be done because he had never
had a patient with hereditary angioedema and didn't know what to do. I ended
up having to rescheduled the surgery, reschedule everyone's days off of work
to suit the new schedule, etcetera etcetera. I was completely overwhelmed
and wanted to skip the op completely.

I hope you get to talk to your own surgeon soon and that your vision
improves as the drops wear off. You are in my thoughts and prayers.

Cindi
who is off to a new surgeon at 2:30 to schedule yet another operation.
kiticat - 27 Jul 2007 19:01 GMT
>> I'm still not sure I trust her. I don't know if my horrendous vision in my
>> eye is down to something she did - she says not but....? If its not better
[quoted text clipped - 16 lines]
> Cindi
> who is off to a new surgeon at 2:30 to schedule yet another operation.

:( Good luck with your surgeon - can I ask what your having to have done
(if its not too impertinent?)

That sounds a horride experience for you :( Unfortunately its friday
evening here, my surgeon is off on his holidays for 3 weeks. If I'm not
happy as soon as these drops have worn off I'm going to go in to the
emergency clinic. Providing it is all ok tomorrow I'm going to put it
behind me for a few days while we have our break and then consider what
I want to do. I'll probably make an appt to see my surgeon when he gets
back and consider whether I need to make a complaint about how the
surgeon today handled it all.

Sarah
Cindi - HappyMamatoThree - 27 Jul 2007 19:31 GMT
>>> I'm still not sure I trust her. I don't know if my horrendous vision in
>>> my eye is down to something she did - she says not but....? If its not
[quoted text clipped - 19 lines]
> :( Good luck with your surgeon - can I ask what your having to have done
> (if its not too impertinent?)

After 34 surgeries I tend to forget that everyone doesn't already know. =-)
We are going to rebuild my abdomen again. The last CAT scan I had 7 new
abdominal hernias, I also have a couple of pieces of mesh that have been
recalled by the manufacturer after the FDA discovered the side effects and
the failures. Since I have no abdominal muscle tissue remaining of my own,
we are going to try cadaveric tissue as muscle replacement. At least that is
what I have discussed with the plastic surgeon and she has discussed with
the surgeon. Anyway, that's pretty much what is happening today.

> That sounds a horride experience for you :( Unfortunately its friday
> evening here, my surgeon is off on his holidays for 3 weeks. If I'm not
[quoted text clipped - 4 lines]
> and consider whether I need to make a complaint about how the surgeon
> today handled it all.

I would say that you definitely need to file a complaint. Regardless of what
anyone else has to say that surgeon needs to know that how she handled your
case today was not acceptable. Regardless of how many surgeries she has done
no patient deserves to be treated like that.

I hope you can get away and just relax and enjoy your holiday away with your
sweetie. You both deserve the break and the long weekend.

Hubby and I have a date on my birthday which will probably be the last for a
while with the surgery pending. It's really hard to find time in alone for
us too. So enjoy your time with your DH and try not to let the experience
today wreck it all for you

Cindi

> Sarah
kiticat - 27 Jul 2007 21:01 GMT
>> :( Good luck with your surgeon - can I ask what your having to have done
>> (if its not too impertinent?)
[quoted text clipped - 7 lines]
> what I have discussed with the plastic surgeon and she has discussed with
> the surgeon. Anyway, that's pretty much what is happening today.

!!
That sounds horrendous! I hope it goes ok today.

>> That sounds a horride experience for you :( Unfortunately its friday
>> evening here, my surgeon is off on his holidays for 3 weeks. If I'm not
[quoted text clipped - 9 lines]
> case today was not acceptable. Regardless of how many surgeries she has done
> no patient deserves to be treated like that.

My Mum phoned after I emailed her and she thinks the same too.

> I hope you can get away and just relax and enjoy your holiday away with your
> sweetie. You both deserve the break and the long weekend.

:) thankyou. I'm looking forward to long walks good food and wine (as
well as time with dh!)

> Hubby and I have a date on my birthday which will probably be the last for a
> while with the surgery pending. It's really hard to find time in alone for
> us too. So enjoy your time with your DH and try not to let the experience
> today wreck it all for you

Thanks Cindi - I hope you enjoy your date and can make the mpst of it too.
Kate - 27 Jul 2007 22:15 GMT
(((Sarah)))

You should make a complaint -  it was atrocious the way you were dealt
with and she needs to know that it's not appropriate to speak to
people that way..

You take care and hope things improve Ok and she was right, albeit she
wasn't treating you like she should have

K :o)
Nan - 30 Jul 2007 22:22 GMT
>After 34 surgeries I tend to forget that everyone doesn't already know. =-)
>We are going to rebuild my abdomen again. The last CAT scan I had 7 new
[quoted text clipped - 4 lines]
>what I have discussed with the plastic surgeon and she has discussed with
>the surgeon. Anyway, that's pretty much what is happening today.

34 surgeries!  Holey Moley....
And I thought all my abdominal scars were bad :-(
If you don't mind my asking, is this due to your gastric bypass
surgery?

I've got a 21 cm. piece of mesh covering my hernia... I suppose the
surgeon would contact me if there's a recall?  I hope?

Nan
Cindi - HappyMamatoThree - 31 Jul 2007 16:35 GMT
>>After 34 surgeries I tend to forget that everyone doesn't already know.
>>=-)
[quoted text clipped - 11 lines]
> If you don't mind my asking, is this due to your gastric bypass
> surgery?

Actually none of it is as a result of my gastric bypass. This is all due to
my necrotizing fasciitis when Ian was born. I got NF in my C-section and we
have been rebuilding over and over and over since then. I have multiple
pieces of mesh left that we hope to replace with cadaveric tissue. We will
see how it goes. The recalled mesh has already been removed, though mine
dehised out which was a pretty good clue that it wasn't exactly working
right.

http://www.fda.gov/cdrh/recalls/recall-122205.html
that's the FDA recall page. You can find out if that is the brand that was
used by calling your surgeon and asking for the type and lot number. Both
should be handy in your chart. Just for safety sake.

This will be my 20th abdominal procedure (I think) I would have to look at
the list to be sure.

Cindi

> I've got a 21 cm. piece of mesh covering my hernia... I suppose the
> surgeon would contact me if there's a recall?  I hope?
>
> Nan
Nan - 31 Jul 2007 18:35 GMT
>Actually none of it is as a result of my gastric bypass. This is all due to
>my necrotizing fasciitis when Ian was born. I got NF in my C-section and we
[quoted text clipped - 3 lines]
>dehised out which was a pretty good clue that it wasn't exactly working
>right.

Cripes.  Scary as hell, I bet.  It's been over 3 years and I'm still a
little freaked out over my c-section eviscerating, so I can imagine
how you must feel.  The thought of anyone messing with my abdominal
area scares me.

>http://www.fda.gov/cdrh/recalls/recall-122205.html
>that's the FDA recall page. You can find out if that is the brand that was
>used by calling your surgeon and asking for the type and lot number. Both
>should be handy in your chart. Just for safety sake.

I called the surgical practice today.  The nurse is going to check
with my surgeon and call me back.

Thanks for the info.

Nan
Cindi - HappyMamatoThree - 31 Jul 2007 20:14 GMT
>>Actually none of it is as a result of my gastric bypass. This is all due
>>to
[quoted text clipped - 20 lines]
>
> Thanks for the info.

Any time. When I found this recall, I had no idea that three of my seven
pieces were effected since not a single doctor had sent me a letter
regarding this. I was soooo mad. It's not like I don't have enough in my
belly that has gone to Sh!t to not get a phone call about this. Ah well, at
least knowing it now means we can fix all of it when we fix all of the new
herniations.

Cindi

> Nan
Nan - 31 Jul 2007 20:21 GMT
>Any time. When I found this recall, I had no idea that three of my seven
>pieces were effected since not a single doctor had sent me a letter
>regarding this. I was soooo mad. It's not like I don't have enough in my
>belly that has gone to Sh!t to not get a phone call about this. Ah well, at
>least knowing it now means we can fix all of it when we fix all of the new
>herniations.

Wow.  You'd think the dr. would inform you if you're affected by the
recall.  
I'm glad you're getting it all taken care of.
*hug*

Nan
Wendy - 27 Jul 2007 20:42 GMT
Sarah, complain long and loud - no matter the outcome. You were treated
absolutely appallingly and that needs addressing.

I hope you don't need that emergency eye clinic hun.
kiticat - 27 Jul 2007 20:58 GMT
> Sarah, complain long and loud - no matter the outcome. You were treated
> absolutely appallingly and that needs addressing.
>
> I hope you don't need that emergency eye clinic hun.

Wendy - do you think it would have repercussions on how the rest of the
department treat me? It does worry me about complaining.
Sarah
Wendy - 27 Jul 2007 23:48 GMT
Not at all. Honestly. If anything they may handle you with kid gloves
but that's not a bad thing!

I received bad treatment in A&E when I was pretty sick. They sent me
home  with a very cursery check over and a very dismissive "not sick
enough to admit" when in fact I had an obstructed common bile duct and
ended up very sick indeed! I didn't complain because I thought I may end
up wanting to work there at some point. Having worked there since, I
*really* wish I'd complained!

>> Sarah, complain long and loud - no matter the outcome. You were
>> treated absolutely appallingly and that needs addressing.
[quoted text clipped - 4 lines]
> department treat me? It does worry me about complaining.
> Sarah
kiticat - 28 Jul 2007 10:53 GMT
Thats good to know - thanks Wendy - I will complain. Today my eye does
seem back to how it was but I shouldnt have had to go through that fear
and I still don't know whats going to happen in the future.

It sounds like you had an awful experience :(

> Not at all. Honestly. If anything they may handle you with kid gloves
> but that's not a bad thing!
[quoted text clipped - 14 lines]
>> the department treat me? It does worry me about complaining.
>> Sarah
Cindi - HappyMamatoThree - 28 Jul 2007 04:30 GMT
>> Sarah, complain long and loud - no matter the outcome. You were treated
>> absolutely appallingly and that needs addressing.
[quoted text clipped - 3 lines]
> Wendy - do you think it would have repercussions on how the rest of the
> department treat me? It does worry me about complaining.

Actually if you make a formal complaint it is typically passed on without
your name attached. If any physician or his staff turn against you because
you are willing to reveal the truth about the treatment you received under a
member of the group then a different doctor is necessary. Though I have
complained about treatment I have never even  had it mentioned to me.

I would say write the letter and be as detailed as you can with the date and
time of treatment, exactly who you received the care from, and what you
expect as a reaction or result of your letter. The more precise you can be
the better it will be received.

If you want to write it and send it my way to read before you send it I
would be happy to just to give you the support to stand up for yourself and
your medical needs.

Hope this evening as been MUCH MUCH better.

Cindi

> Sarah
kiticat - 28 Jul 2007 10:50 GMT
>>> Sarah, complain long and loud - no matter the outcome. You were treated
>>> absolutely appallingly and that needs addressing.
[quoted text clipped - 23 lines]
>
>> Sarah

Thankyou for all your kind advice and offer Cindi. I can't think about
it today - I'm tearful writing this and just can't deal with it. I'll
wite the letter after I get back. Many thanks.
Mo - 27 Jul 2007 18:47 GMT
> today didnt go very well at the hospital. Saw my cataract surgeon this
> morning and that was fine.
[quoted text clipped - 38 lines]
> bad that its worth taking the risk. So now I'm left feeling scared
> with the prospect of months of deterioation at best.

Oh Sarah, that story scared *me* silly, can't even begin to imagine how
*you* must be feeling ;-(. I wish I was right there to give you a big hug
and kick that *$&%^%# doctor around. All possible vibes coming your way for
the best possible outcome.
Signature

Mo

kiticat - 27 Jul 2007 18:55 GMT
>> I'm still not sure I trust her. I don't know if my horrendous vision
>> in my eye is down to something she did - she says not but....? If its
[quoted text clipped - 7 lines]
> and kick that *$&%^%# doctor around. All possible vibes coming your way for
> the best possible outcome.

I can't stop crying, I'm scared and angry and really upset. It should be
a simple straightfoward thing and I cnat believe it was so horrid and I
don't know how bad my eyesight is going to get now. I really really
thought it would all be over and I could enjoy my summer break and move
forward form this rubbish time.

Maybe things'll seem better in the morning when these ratted drops have
worn off and I can see if she was telling the truth. There isnt a colour
difference in the vision between my eyes now so that must be good?

Thanks Mo.
Mo - 27 Jul 2007 19:12 GMT
>>> I'm still not sure I trust her. I don't know if my horrendous vision
>>> in my eye is down to something she did - she says not but....? If
[quoted text clipped - 9 lines]
>
> I can't stop crying, I'm scared and angry and really upset.

Totally understandable and justified.

> It should
> be a simple straightfoward thing and I cnat believe it was so horrid
> and I don't know how bad my eyesight is going to get now. I really
> really thought it would all be over and I could enjoy my summer break
> and move forward form this rubbish time.

((((((((((Sarah))))))))))

> Maybe things'll seem better in the morning when these ratted drops
> have worn off and I can see if she was telling the truth. There isnt
> a colour difference in the vision between my eyes now so that must be
> good?

It certainly sounds like the effects are wearing off, fingers crossed for
the rest to wear off soon.
Signature

Mo

Aula - 27 Jul 2007 23:13 GMT
> today didnt go very well at the hospital. Saw my cataract surgeon this
> morning and that was fine.

<<<<<<<<<Sarah>>>>>>>>>>

Oh my goodness!!!  That doctor was beyond unprofessional and you should
complain loud and long and consider a lawsuit if this means your vision is
impaired for a longer period of time than it would be if she hadn't done
whatever she did today.  That is absolutely horrid!  My prayers and thoughts
are with you.

-Aula
kiticat - 28 Jul 2007 10:48 GMT
>> today didnt go very well at the hospital. Saw my cataract surgeon this
>> morning and that was fine.
[quoted text clipped - 8 lines]
>
> -Aula

This morning my vision seems to be pretty much back to what it was
before she started. thank goodness. I kept waking up through the night
to check I could see. As a consequence I'm ridiculously weepy this
morning. I'm going to try and push the whole thing aside until we get
back - I can't really deal with this today.
Thanks aula
Aula - 28 Jul 2007 11:45 GMT
> This morning my vision seems to be pretty much back to what it was before
> she started. thank goodness. I kept waking up through the night to check I
> could see. As a consequence I'm ridiculously weepy this morning. I'm going
> to try and push the whole thing aside until we get back - I can't really
> deal with this today.
> Thanks aula

I'm glad your vision seems to be back to normal.  Waiting to write your
complaint letter until you've had space to calm down and so forth is wise.
You will be much more articulate and able to present your concerns so that
hopefully others will not have to experience what you went through.  I hope
you still go on your outing with hubby!

Aula
Nina Pretty Ballerina - 28 Jul 2007 06:01 GMT
> today didnt go very well at the hospital. Saw my cataract surgeon this
> morning and that was fine.
[quoted text clipped - 37 lines]
> taking the risk. So now I'm left feeling scared with the prospect of
> months of deterioation at best.

thoughts are with you, that sounds awful.  You dont deserve that

chris
kiticat - 28 Jul 2007 10:45 GMT
> thoughts are with you, that sounds awful.  You dont deserve that
>
> chris

thanks Chris.
Sarah
Marc - 28 Jul 2007 14:05 GMT
<snip>
"kiticat"
> today didnt go very well at the hospital. Saw my cataract surgeon this
> morning and that was fine.
[quoted text clipped - 37 lines]
> taking the risk. So now I'm left feeling scared with the prospect of
> months of deterioation at best.

eeep, I'm glad to hear it is going better. ~~~~~~~~~~~~~~~~~, complain
woman, that might wake her up that she is treating people and not doing
procedures. I hope the break goes wonderfully.
Marc
Nan - 30 Jul 2007 22:23 GMT
>today didnt go very well at the hospital. Saw my cataract surgeon this
>morning and that was fine.

(((((Sarah)))))

Nan
 
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