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Family Forum / Parenting / Single Parents / September 2006New Again
Hi everyone. It's been awhile. Well 3 years since I last posted. Lots have been going on in our lives. Googled groups with my name and found you again so, I decided to join back up. Hope things are going great with everyone. > Hi everyone. It's been awhile. Well 3 years since I last posted. Lots > have been going on in our lives. Googled groups with my name and found > you again so, I decided to join back up. Hope things are going great > with everyone. Hello and welcome back, I myself do not remember reading you, although I had been lurking back then. Could you give me a brief intro ? I'm Bev I have a soon to be 25 year old daughter that will be graduating in December from the Art Institute in San Francisco and a just turned 19 year old daughter living with me, she has a mental health diagnosis, a soon to be three year old daughter that I adore that lives with us part time and a soon to be nuther baby daughter due in Feb ! We are quite busy day to day around here........ Bev >> Hi everyone. It's been awhile. Well 3 years since I last posted. Lots >> have been going on in our lives. Googled groups with my name and found [quoted text clipped - 12 lines] > > Bev I'm gonna piggyback on Bev, as I also don't think I remember you either... Then again, my brain just isn't what it used to be lately! But, anyways... Things have been pretty good over here lately. Some days good, other days not so good. Generally, though, it's been alright. Welcome back, anyways, although I still can't remember you from 3 years ago, but once I think about it, I have enough trouble remembering what happened 3 hours ago, nevermind 3 years ago! >Hi everyone. It's been awhile. Well 3 years since I last posted. Lots >have been going on in our lives. Googled groups with my name and found >you again so, I decided to join back up. Hope things are going great >with everyone. Yep... things are great. Busy but great. Nice to see you post again. I don't remember more about you than the nickname that you use. As you said, lots has happened inbetween. Fill us in on what's new in your life! 'Kate Well, my name is Jennifer and I have a 5 year old daughter Ryli. However, back then her name was spelled Rylee. I had it changed. We live here in London ON, Canada. Ryli has been in and out of the hospital since she was born. I believe the last time I posted is when she was going in to Sick Kids Hospital in Toronto. I had to dissconnect my internet so I could save the money for her. Ryli has had tests run for Porphyria type AIP. They have come back slightly possitive, but a specialist in Montreal has ruled it out. Good for us. Ryli is still having problems and her specialist here thinks her bowel is swallowing itself or is twisting or knotting up. Every time Ryli is in pain, we have to rush her to the hospital cus surgery is the only way to fix it. But, most of the time, by the time we get there, either the pain is gone or they can't get her in fast enough for x-ray and ultrasound to prove that this is what's going on cus she's vomiting and not stable. Also, he has put her on a trial period for this drug for Stomach Migrains. This is what I believe she has. She's been on the drug for over a week and so far, no pains. Which means no vomiting, which means no dehydration and no more hospital stays. Her pains have been so severe in the past that she has vomited herself to dehydration and hospitalization. So, this is what we're going through right now. I had to quit my job cus we were at the hospital so much. But, Ryli is in school. Every other day. But, I don't send her if she wakes up with pain. Even if it's mild and has only lasted 5 minutes. Other than that, everything else is going good. And, I hope to get reconnected with all of you once again. > Hi everyone. It's been awhile. Well 3 years since I last posted. Lots > have been going on in our lives. Googled groups with my name and found > you again so, I decided to join back up. Hope things are going great > with everyone. > Well, my name is Jennifer and I have a 5 year old daughter Ryli. > However, back then her name was spelled Rylee. I had it changed. We > live here in London ON, Canada. Ryli has been in and out of the > hospital since she was born. I believe the last time I posted is when > she was going in to Sick Kids Hospital in Toronto. I had to > dissconnect my internet so I could save the money for her. Hm... Still not ringing any bells for me, but that's alright! One good thing... The Children's Hospital in TO is fantastic, as far as hospitals go (I am NOT a fan of doctors and hospitals and all that) > Ryli has had tests run for Porphyria type AIP. They have come back > slightly possitive, but a specialist in Montreal has ruled it out. [quoted text clipped - 10 lines] > hospital stays. Her pains have been so severe in the past that she has > vomited herself to dehydration and hospitalization. Yikes! Poor girl! I can't imagine how that would be to deal with - for both you and her. I was all in a tizzy and running around like a complete moron on the one occasion B was hospitialized... I couldn't even drive (given the circumstances for the hospital and the kid and all that) and even the time not long ago that he smashed his noggin wide open again on his operation spot and I had to rush him to the doctor, I realized I really don't handle emergency situations AT ALL. At least, though, what she's on seems to be helping her and she's even able to be in school! > So, this is what we're going through right now. I had to quit my job > cus we were at the hospital so much. But, Ryli is in school. Every > other day. But, I don't send her if she wakes up with pain. Even if > it's mild and has only lasted 5 minutes. Aww... Poor kid, and so young. She must be a tough little girl! (And you too) I'm actually not even sure what "Porphyria type AIP" is, but, hopefully this new medication she's on will help! > Other than that, everything else is going good. And, I hope to get > reconnected with all of you once again. >> Hi everyone. It's been awhile. Well 3 years since I last posted. Lots >> have been going on in our lives. Googled groups with my name and found >> you again so, I decided to join back up. Hope things are going great >> with everyone. > Well, my name is Jennifer and I have a 5 year old daughter Ryli. > However, back then her name was spelled Rylee. I had it changed. We [quoted text clipped - 29 lines] > > you again so, I decided to join back up. Hope things are going great > > with everyone. Hello Jennifer, So sorry to hear about your little ones illness. I imagine it has been quite stressful and scary at times. How frustrating it must be to be only moments from being able to have a corrective surgery. I hope this new medication she is taking continues to keep her pain free. I just hate to hear of a child suffering like that.Take care of yourself , you are a special mom, remember to take special care of you! hugs for you both, Bev >Well, my name is Jennifer and I have a 5 year old daughter Ryli. >However, back then her name was spelled Rylee. I had it changed. We >live here in London ON, Canada. Ryli has been in and out of the >hospital since she was born. I believe the last time I posted is when >she was going in to Sick Kids Hospital in Toronto. I had to >dissconnect my internet so I could save the money for her. I'm glad you've checked in. I do remember Rylee because of her unusual name. >Ryli has had tests run for Porphyria type AIP. They have come back >slightly possitive, but a specialist in Montreal has ruled it out. [quoted text clipped - 10 lines] >hospital stays. Her pains have been so severe in the past that she has >vomited herself to dehydration and hospitalization. Oy.. the poor baby! How are you managing? Tellya what's weird about this... my 16 year old has just been diagnosed with gallbladder disease. We're waiting for the ok from the insurance company for surgery. Anyway... your description sounds a lot like what my "little" girl has. Her gallbladder starts to spasm and it spasms everything down the line to the stomach. Then she throws up. Fatty foods set it off more than other foods but she has to eat frequent, small meals to ward off the worst of the pain. Her HIDA (no idea what it stands for) scan showed marginally insufficient gallbladder function. If your daughter's pains are anything like what we're experiencing here... I feel for you guys. >So, this is what we're going through right now. I had to quit my job >cus we were at the hospital so much. But, Ryli is in school. Every >other day. But, I don't send her if she wakes up with pain. Even if >it's mild and has only lasted 5 minutes. I'm glad you got her schooling squared away. I'm homeschooling my daughter this year... gives me time to prep her for the SAT anyway so I'm happy. :-) >Other than that, everything else is going good. And, I hope to get >reconnected with all of you once again. I thinkya just did! 'Kate if you go back to around june 2003, you'll see some of my posts. i remember steveb and keith if that helps. >if you go back to around june 2003, you'll see some of my posts. i >remember steveb and keith if that helps. LOL... don't we all remember. That was a wacky period in sss-p history. |
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